I wasn’t happy about it, but Mommy and Daddy stuck me in a big, furry bear costume Saturday. They took me to a party a couple of houses away from ours that night. I was pretty cranky though since I got up at 4am that day and only took a two-hour nap. So, I didn’t get to stay for very long. It was really cold out that night so it is a good thing I was wrapped up in all that fur!
Then tonight, Mommy and Daddy took me to the neighborhood next door for another party. It was hot though so I wasn’t a fan of the bear costume. This time I got to go knocking on people’s doors and begged them for a toy. They didn’t understand me though and kept giving Mommy and Daddy candy. That is not fair! Don’t they know I can’t eat that? 🙁 Mommy had a big smile on her face that night though. I think she ate my candy.
Mommy stayed to help pass out candy at a friend’s house so Daddy walked me home. On the way home, a little boy started running up to me but his dad said “don’t touch him because he sounds sick.” 🙁 Then another lady we walked by said I was “croupy”. I don’t think I am croupy. I have had my bark since I was born.
Today I had to wear an EKG for 24 straight hours. It is called a holter. I had to wear it to make sure my heart is good since 85% of Costello kiddos have heart issues. Mommy told me I was not allowed to get the device wet or else she had to pay a lot of money. Well, I decided to get a stomach bug that day and threw up about 15 straight times. I missed the holter device every time though. It is a good thing I am better at Angry Birds.
I got the results back for the test a few weeks later and they said so far my heart is “mostly normal”.
2:17 AM Monday
My sleeping has been getting really bad so Mommy said I needed to start a sleep journal. It is just past 2 AM and I’m wide awake and hurting. I’ve been sick since Thursday of last week. I must have set a new world record throwing up 15 times in a row last Friday morning when Mommy was watching me. You should have seen the distance I was getting on my vomit! Mommy took me to the doctor and she gave me some stomach medicine that makes me stop vomiting. My fever is up to 102 and that doesn’t make me happy either. It is going to be a long day.
10:00 PM Monday
All day with no naps! I knew I could do it. I have been a total disaster today – crying, fussing, puking, and I have a fever. This is the worst Nanny Brittany has ever seen me but I haven’t scared her away yet. The night nurse just got here so now I have someone else to cry to.
8:49 PM Tuesday
It is now almost 24 hours since my last journal entry.
It’s been over 40 hours since I last slept! Yes, that’s right over 40 hours. I have been up since 2 AM on Monday. I keep trying to tell Mommy and Daddy what is hurting me but they don’t understand my cries.
We had a busy day today seeing my geneticist and pediatrician. The doctors just didn’t know what to say or do. They have no idea what is wrong with me but I keep trying to tell them with my crying. I heard someone say “oh he’ll get tired of crying eventually” – but I’ll show them.
Last night, I made the night nurse and Daddy hold me ALL NIGHT! Every time she tried to put me down I would throw a complete temper tantrum. When I don’t feel good, I just want to be held.
3:09 AM Wednesday
Wow do I feel good. I finally got a full 3 hours of sleep. Rested and relaxed now I can get back to my crying!
12:01 PM Wednesday
My Occupational Therapist just came by to try to feed me. It didn’t work out so well as all I did was cry. She is very concerned about my “attitude”. Ha. She said I am acting how I was months ago with all my crying. She was going to call my pediatrician and tell on me.
9:01 PM Wednesday
My neurologist just called and gave me a prescription for something called Valium to help me sleep better. Not sure I’ll sleep tonight either as staying up all night is kind of fun. I’m starting to feel a little better now though.