2:17 AM Monday
My sleeping has been getting really bad so Mommy said I needed to start a sleep journal. It is just past 2 AM and I’m wide awake and hurting. I’ve been sick since Thursday of last week. I must have set a new world record throwing up 15 times in a row last Friday morning when Mommy was watching me. You should have seen the distance I was getting on my vomit! Mommy took me to the doctor and she gave me some stomach medicine that makes me stop vomiting. My fever is up to 102 and that doesn’t make me happy either. It is going to be a long day.
10:00 PM Monday
All day with no naps! I knew I could do it. I have been a total disaster today – crying, fussing, puking, and I have a fever. This is the worst Nanny Brittany has ever seen me but I haven’t scared her away yet. The night nurse just got here so now I have someone else to cry to.
8:49 PM Tuesday
It is now almost 24 hours since my last journal entry.
It’s been over 40 hours since I last slept! Yes, that’s right over 40 hours. I have been up since 2 AM on Monday. I keep trying to tell Mommy and Daddy what is hurting me but they don’t understand my cries.
We had a busy day today seeing my geneticist and pediatrician. The doctors just didn’t know what to say or do. They have no idea what is wrong with me but I keep trying to tell them with my crying. I heard someone say “oh he’ll get tired of crying eventually” – but I’ll show them.
Last night, I made the night nurse and Daddy hold me ALL NIGHT! Every time she tried to put me down I would throw a complete temper tantrum. When I don’t feel good, I just want to be held.
3:09 AM Wednesday
Wow do I feel good. I finally got a full 3 hours of sleep. Rested and relaxed now I can get back to my crying!
12:01 PM Wednesday
My Occupational Therapist just came by to try to feed me. It didn’t work out so well as all I did was cry. She is very concerned about my “attitude”. Ha. She said I am acting how I was months ago with all my crying. She was going to call my pediatrician and tell on me.
9:01 PM Wednesday
My neurologist just called and gave me a prescription for something called Valium to help me sleep better. Not sure I’ll sleep tonight either as staying up all night is kind of fun. I’m starting to feel a little better now though.