Hi there!

My name is Westin and this is my blog.  I was born on 2/9/11 and on 7/5/11 I was diagnosed with a rare disease called Costello Syndrome.  I tested HRAS positive with the G12S mutation.  They think there are only 200-300 people with Costello Syndrome in the world!  Costello affects many systems in the body so I will have a lot of medical complications throughout my life. 

Read some information about Costello Syndrome here:


Have fun listening to my stories!  And, don’t forget to sign up for an e-mail subscription so you don’t miss any of my posts! 


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